I will always love you forever Makenzie

 When I was pregnant I knew you would make an impact in this world. I knew you were special the first time I saw and held you. You were one amazing girl who loved life to the fullest and never let anything get in your way. You were the light of this world that shined brighter than any star. You made me a better person, you were an amazing example to all those that you met. Thank you for choosing me to be your mom and allowing me to take care of you these past 14 years.

I'm not sure why the Lord needed you back, but I am so grateful that we will see you again and that you are mine forever. Life will be a lot different with out you here on earth. My heart will always be missing a piece and that piece will always be for you. Thank you for showing me how to love and be patient, and to be a good mom. 

300 Days

I can not believe Makenzie has been in the hospital for 300 days waiting for a new Heart and Kidney. It has been a long road and Kenzie can defiantly feel it somedays. Her Child life specialty and I decided to throw her a drive by parade with friends and family since this whole covid thing and people can't visit her.
It turned out pretty good she had a lot of people show up and give her support. A few of her friends and family got out of their vehicles to say hi but they had to stay distant so It was hard to see everyone leave and have to say bye to them.
Makenzie is so strong and is not giving up and wants to continue to live even though it has been a hard year for her. But she is defiantly ready to get that transplant so she can come home and be a normal teenager and play with her sibling and friends.

13 years heart anniversary

My heart is full of love today. 9 months ago we had no idea we would be celebrating 13 years with Kenzie or her special Heart. We are forever grateful for her donor and the selfless act at such a difficult time. We will be forever grateful for these past 13 years to have watched her learn and grow and become who she is today.
We are excited to see what the future holds for her with her new Heart and Kidney, but we will always celebrate her first transplant anniversary as well, because we were blessed by the love someone gave our family 13 years ago by letting us be able to watch Kenzie grow up. (Yes we snuck out again and celebrated with our family, shhh don't tell)
 Kenzie was really wishing to get her transplant today so she could celebrate both anniversary the same day..but it was amazing spending the day with the family to celebrate her first gift of life.
#fightwithmakenzie   #13yearheartiversary #familyof9  #lovemyfamily #donatelife #beAherobeAdonor

200 days

 Today marks 200 days in the hospital. 200 days ago we had no idea if Makenzie was going to even be here with us still. The tender mercies of the Lord has definitely been with Makenzie these past 200 days. She has been through so much mental, emotionally, and physically. It has definitely been a long hard stay at the hospital for everyone, my brain hurts 🤣.

We have had to watch Makenzie cry, laugh, be scared of the what ifs, had months were she wouldn't even talk.  Have very hard conversation that no parents would ever want to have with doctors, nurses and your child. We have had many good days and some very scary days, I have cried more times than I can count, and my mind wanders to places that I hate. I'm trying to be as strong as I can for Makenzie but some days are to hard, and sweet Makenzie always finds a way to help me get through it, and then there are days where we just cry together.
This has been a very long journey, compared to her first transplant, We only waited 26 days out patient.
We are still trying to be very positive that when it is the right time Kenzie will receive a heart and kidney.
By celebrating, because we have to find something to celebrate if your stuck in the hospital, Kenzie wanted to pass out cupcakes to everyone, and her dad brought her up roses, two roses to be exact 1 for each 100 days.
Thank you all for the continued prayers for our sweet Kenzie, she is one tough girl who is still ready to conquer this world, and not give up.
*On a side note, we are going to miss Kenzie's nurse Maggie she is moving to the picu. 

Makenzie Age 14

Makenzie is 14 we are thankful for her donor to give us these 13 extra years with her to watch her learn and grow, here are to many more years.  We celebrated it at the hospital. Her friends were able to come and have a picture scavenger hunt and Ella her friend made her a surprise Pinata cake that had skittles in the middle of the cake.
We also had family come up and celebrate with her, everyone pitched in and bought her a nice snow cone maker. Her nurses made her a big birthday sign that was in front of her hospital room.

We love you Makenzie Happy birthday sweet heart ❤️

Heart Rhythms

Makenzie has been having some heart Rhythm issues, and her heart rate was going all over the place and it got scary, she started to pass out and get confused and thought she was going to die. They brought in the pacemaker machine to try and correct the arrhythmias, and thankfully it worked.
But they did take Kenzie to the CICU to monitor her, and decided she needed a lead on one of her chambers so then next morning  she went to the Cath lab for a biopsy and to put in an additional pacemaker wire. It took so long, I really hate waiting for procedures to get done with. But after 2 hrs they were finished and she did great, and the new pacer wire was working. They had her stay in the CICU for another night to monitor her and the next day she was able to go back to the floor.