Clinc, Pink Eye and a Cold

Clinic went well last Thursday they had to take a lot of blood this time, her usual to check her levels and they needed extra blood to see if she has a virus that is causing her diarrhea. Her Echo looked good her levels all looked good. Her magnesium level was a little low but Carrie was not to concerned. The doctors at PCH are also concerned about the caffeine she is on and her weight gain so Carrie decided to lower her dose down to 4ml once a day instead of 5ml.

Last Saturday during the night Kenzie was all stuffed up and around 4 A.M Kenzie started coughing so i took her temperature and she had a fever of 100.4 so i gave her some Tylenol and 10 min later she threw up. Flash backs came but i new she was not have rejection cause we just went to clinic so the next thing that came to mind was the swine flu i could not sleep i was tempted to take her to the emergency room with an immune suppressed child they can catch everything. The next morning i called the on call coordinator and talked to Michelle she said it does not sound to concerning but if things seems to worsen take her in.

Now on Sunday Kenzie woke up with her left eye glued shut so i didn't think anything of it then later on during the day her eye got red and goop started coming out so i took her to the inst care and 2 hours later we finally got in and they prescribed her with eye drops and i had the doctor check everything else since she has had a cough and stuffy/runny nose just wanted to cross off the swine flu. Doctor said it is probably just a virus causing a cold.

Haltor Monitor Update

Today I talked to Michelle the transplant coordinator Makenzie has been having diarrhea for about 2 weeks so on Thursday they are going to do a few blood test (CMVPCR and EBV) to see if it is a virus so i will up date that later.

But now for the good news we got the halter monitor results back if you no Makenzie's background she was diagnosed with having bradycardia which means she has a low resting heart rate. Her prior holtors showed lowest her heart rate sat was in the 40's when she would sleep and the highs would be in the 150's with the caffeine. Anyways this time her lowest heart rate was 55 asleep and 150 for the high, her average was 117 so those are very good numbers for her. So the caffeine is doing its job.

Update

Just a little update on clinic once again. This week we went on Thursday it went pretty smooth other than her labs, she had a lot of blood that needed to be drawn so they had to do draw from her vein which they found one in her wrist. This time the nurse didn't quite get it the first time she ended up digging around for a minute which bugs me.
Anyways her labs ended up looking good but waiting for her Cellcept level to come back, Echo looked good as well even though the Tech this time took for ever. They also put a halter monitor on her which needed to stay on for a 24 hour period to record her heart rate so hopefully it recorded it because when she woke up there was only one lead that was stuck on her chest she is a wiggler at night so it didn't surprise me that they all fell off. We should get the results back sometime next week I hope so I will have to post the results next time.
We are down to once every other week now which is a little nerve racking to me because I like the feeling of knowing that her heart is still functioning properly every week and there are no signs of rejection.
On the other hand we ran into our good friend Noah which had a Heart Transplant the same year Makenzie did in Denver. His Mom said that he is doing good and his Echo also looked perfect. He is getting big and we love your hair Noah so cute.