Makenzie had a Cath done, and the results were not what we were hoping for. The results came back as her having CAD (Coronary Artery Disease) which is common for transplant, and the result of needing a New Heart Transplant. We are so thankful that her heart lasted 12 years, but definitely hoped it would have lasted longer.
She was Placed on the list as of May 2, 2019 as a status 1B. She will be able to stay out patient while on milrinone to help keep her heart functioning properly while she waits for an angel heart to come. We are hoping one will come real soon, but it's that mixed emotion of someone else losing a child, which I can not imagine having to go through that.
But we are so ever grateful that when the time comes that someone said yes to Organ Donation, and saved our girls life.
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