It has been a long month and a half. Makenzie got admitted to the hospital August 20th (first day of school) She has had a cough since April. They treated her for Pneumonia about 4 times, and finally her Cardiologist decided to do a CT scan of her chest and sinuses. Come to find out she had fungus in her lungs ( the term is aspergillus). They ended up doing a sinus clean out and went down her lungs to take samples of the mold. We ended up staying a week and a half.
On September 12th Makenzie had a Cardiology appt, she wasn't feeling very well that day. They took blood they they always do and found out that all her levels were either to high or to low, so she got admitted that day. She ended up this time with C-diff, sapovirus, and rhino virus. They put her on antibiotics for the C-Diff, and a 2 days later we were able to go home.
On September 26th we ended up in the ER, Makenzie's stomach has been getting a little enlarged through out the week, I thought maybe it was her C-diff that was causing the problem. She ended up getting admitted again, they thought at first it was her liver malfunctioning, but she ended up having ascites which is the accumulation of fluid in the peritoneal cavity, causing abdominal swelling.They ruled out her liver, kidney and lungs. They were worried that it was her heart being in rejection, so she ended up getting a cath done, they also did transesophageal echocardiogram, which will allow them to get a closer look at her tricuspid valve that is leaking. Come to find out they do think it is from hr valve that leaks, We ended up staying in patient at the hospital for 10 days this visit. Primary Children's Hospital does not clamp tricuspid Valves through the Cath Lab, So Dr Molina reached out to a Dr at IMC hospital to see if Kenzie was a good candidate for the procedure. Come to find out she was and they scheduled her for the procedure October 10th. We met with the Dr. Dr. Whisenant the day before, to talk to him about the procedure, we found out that he has only done 2 cases like this and none of them were children, it was a little hard to hear that, but he felt pretty confident that he could do it, and if not he would stop the procedure. The good news that made me feel more comfortable with this was that Dr, Gray ( her Pediatric Cath Dr was going to be there with her)
It has been a long morning, we got to IMC hospital at 6:45 am. They are definitely not a pediatric hospital, they gave her a ginormous gown when we go here lol, they eventually found a smaller one. They tried using an adult blood pressure cuff, that didn't work so well, and no child life specialist 😉. She was definitely not having it.
The procedure started at 9 am, she was super nervous about it, I think I was more then she was, but she did great. The procedure took 3 hours. It was a long three hours. (This hospital has way more code blues and code strokes then primary's, it gave me a panic attack Every time it went over the intercom) This was there first ever pediatric tricuspid valve clamp they have ever done. So when those calls came over the intercom my heart stopped for a min. But They were able to get her tricuspid valve clamped successfully. Dr. Whisenant said she did amazing, better then what they were hoping for. The Drs and nurses were so great to accommodate her needs, before and after the procedure, they even gave her a balloon and some candy, after her procedure. We are not sure of how long she will have to stay or if she gets to go home today. If she has to be monitored they will most likely transfer her to Primary Children's hospital. We are Hoping this will help her body and heart feel so much better. She is so over hospital visits.
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