Difficult Decision

Last Thursday Kenzie went to her first appointment after being treated for rejection her echo looked a little better from when she got admitted in the hospital so that was a good sign that the medications are working.

She seen Dr. Everitt and asked me if we wanted to do her cath here in Utah and transfer all her care to PCMC or go back to Colorado, and keep doing what we have been doing and have both hospitals care for her.

My thoughts were that it is nice to have both hospitals to co manage her care and of course we love The Children's Hospital in Colorado, not to mention Dr. Campbell her surgeon who saved her life both times when she got her new heart and her pace maker.

Also Carrie her transplant coordinator who is amazing at what she does and knows how to comfort me when we lived down there multiple times when Tyler had to stay in Utah. I also trust her and every time PCMC wanted to do something sure enough I called her first before it happened.

So of course I talked to Dr. Everitt and she told me that her and Dr. Pietra thinks that times it can get confusing on both ends just because they do somethings different. Which I understand especially with all that Kenzie has gone through and we are hoping it gets better but who knows what the future holds. And Kenzie likes to keep us on our toes

So when we got home from her clinic Carrie called me to see how Kenzie was doing. Of course I asked what she thought about the whole Idea and she kind of gave me the same answer as Dr. Everit. She also told me that PCMC has came along ways in the last 4 years and the transplant organization is basically the same. She also said that she would be sad to not be part of Kenzie's care anymore, and that I wouldnt be able to call her for answers, but she would still be my friend and a support system if we choose to transfer care. And she knows how hard it is for our family to be away from Tyler for so long. Which I told her I love Tyler with all my heart and miss him dearly but I would rather have the best care for Makenzie.

So at the end of the week Tyler and I thought and prayed about it and we came to a conclusion that we would transfer her care to Utah. (Just writing this makes me sad to say it). Only because Makenzie has had so many issues with her new heart and we don't want to wait like last time she went into rejection and got life flighted to Colorado and went into Cardiac Arrest when PCMC could have started treatment instead of us waiting for hours to get her to Colorado to get treated.

Yes it is very hard for us to put her care soley into PCMC since The Childrens Hospital has been there since day one for her and knows everything about her, but both hospitals have there best interest in Makenzie and want the best care for her. We are surely going to miss everyone in Colorado and are so Thankful for all that they have done for Makenzie and all the amazing people we have met and became so close to (writing this is making me cry) They are certainly amazing people and I am glad we made friends out of all of this. And I sure hope we can still keep in contact with everyone.

I guess we will just have to go and visit every other year for a mini vacation. So we can visit everyone that has been a blessing in our lives.