I got a call from Michelle (her transplant coordinator) on the 18th and the first thing she told me was that we got the halter results back and she needs a pacemaker. No easing me into it so yes I just fell apart and cried. I asked why and she told me that she had 33 pauses over 2 sec long and a few over 3 sec long. I then asked what her heart rate range was and the maximum was 139 her average was 87 and the low was 42. which sounds like Kenzie but the pauses were the concern. She then asked me if we would like to do it here or in Denver and we chose Denver.
So i finally got a hold of Carrie and she explained it so much better and of course I had questions for her and she answered them the best she could. Of course she doesn't know everything about pacemakers but she did her best to answer them.
So on February 8 will be the Cath and February 10th they will put the pace maker in. So first they will do a Cath on her to make sure there is no rejection going on or anything else that may be causing it. They will also do an EP test to check the electrical part. Since Kenzie is so little it will be a open chest surgery so they will have to reopen her old incision and open her up that way and put the pace maker in under her ribs.
Carrie told me that since she had pauses over 3 seconds whether it was a one time thing or more than once that it requires a pacemaker because I ask if they could do another halter monitor but she said it wouldnt make a difference cause it showed up this last time and that is enough for a pace maker. Other wise it could keep getting longer and longer and cause a heart attack or just completely stop all together. In the past 3 years they have been doing holter monitors the pauses have been in creasing which shows that it is not getting better so a pace maker will help her in the long run and hopefully help her growth as well.
Yes I am very scared and it makes me cry every time I think about it. She was having such an amazing winter this year. She hasn't even gotten sick or anything, I was hoping this would be the best winter she has had since her transplant but things change you can never let your guard down that's for sure. The amazing thing is that she wasn't supposed to get a halter done for another 3 months but they decided to do it earlier. So who knows what could have happened in those 3 months. She defiantly has someone watching over her. I am thankful that they caught it before it did get worse and something worse happened to her. Things happen for a reason and she has so many friends and family support out there that it makes it more comforting she defiantly has angels watching over her. She will be a new little girl but also the same little girl just with something helping her heart stay healthy and pumping properly. Yes I am trying to stay focused on the positive it is hard but I have to do it for Makenzie. I love her so much and I am so thankful for her and all that she brings to this family and I am so thankful that she is still with us I don't even know how to thank my Heavenly Father for allowing her to stay here with us we have almost lost her twice and yet she is still with us and a very ambitious, smart, loving girl . She is a strong girl who will fly through this just like she has in the past bumps in the road.
Please keep her in your prayers. And thank you all for the prayers sent her way it means so much to our family that we have the support we have. We are also doing a fast for her on February 6 if anyone would like to join.
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We sure do love you Kenzie! This is the best winter EVER :) Our prayers are with you and your family. But you know, you're going to do awesome. After you have this in, you're going to be able to do soooooo many fun things! Love to you!!!
ReplyDeleteGreat Aunt Jenny
Thanks Jenny we love you too
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