Friday, May 1, 2009

A world changed in an instant

A little history on Makenzie since it took me so long to figure this blog out.
February 17, 2007 Makenzie got sick and had a fever of 103 so we took her to an instacare thinking they will just give her fever reducer medication her oxygen level was low they took her to get a xray and found that her heart was enlarged for her size so they ambulanced her to Primary Childrens hospital. She was then admitted and put in the PICU. They later found out that her left coronary artery was on the wrong side of her heart and her oxygen was circulating around and not through her body. They did a ALCAPA repair to try and fix it. She was in the hospital for a month. She was then released, 2 weeks later she got readmitted back because the surgery didn't work cause there was already to much damage to her heart and wont ever go back to normal. They then told us she needed a Heart Transplant and insurance wouldn't cover the transplant in Utah so off to Denver we go she went by life flight from Utah to Denver in April to a wait a Heart.
She was put on milrinone and we waited for 23 days and then got the call.
Every little thing went threw my mind scared, happy, anxious and sad for the lose of another child and family, but very grateful they chose to have there child be a donor and give my daughter a second chance at life.
After the Transplant she was diagnosed with Bradycardia
she was put on Caffeine to help her heart rate and a lot of immune suppressant
medications right after the transplant. She was only in the hospital for 1 1/2 weeks.
We then stayed at the Ronald McDonald house in Denver for the
3 months post Transplant. She was seen twice a week in clinic to
get Echo's, Ekg's and blood work.
We then were able to come home the end of August of 2007.
Eventually the clinic days where spread further apart and life was great.
She did get sick alot more and they seem to last forever, and everytime rejection was always in the back of my mind, she did have a few ER visits but luckly nothing major. She was our happy little girl. Thank you to our angel donor and the family for saving our little girl.

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