I have been dreading this day for many years. Trying to avoid a G-tube was hard work, and we didnt accomplish it. We've been to multiple nutritionist, feeding therapies, power packing, and nothing worked. Kenzie just did not like eating. I tried postponing it for as long as I could, Her Dr's gave us few months to get her to 45 lbs to avoid a g-tube. A month later Kenzie got sick and lost 5 lbs which left her at 35 lbs which is super skinny for a 9 year old. On her cardiology apt, Dr. Lal sent us to a gastrologist Dr. they then decided that it was time for a G-tube. As a parent I felt like a failure, I felt like I let her down.
Surgery day came, and we hate those days, sending her back always makes me tear up, which doesn't help her at all. Surgery went well, she had to stay over night to make sure she could tolerate her feeds. That night she started shaking, and kept drifting in and out. It was one of the most scariest things I witnessed, the crazy thing was that after about 10 mins (felt like forever) she just snapped out of it and acted fine. The night went good but she tolerated her feeds well, but I wanted to stay another night due to the scare the night before. We actually stayed for a few nights so they could monitor and make sure she was safe to go home.
It was a long recovery for her, she could barley walk, and slept on the couch for about a week or so. eventually it got better and she is doing great. NOW TO GET SOME MEAT ON THOSE BONES!
Wednesday, April 22, 2015
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