Makenzie's Day

 

5 years ago today Kenzie received a new heart, it's been a roller coaster for sure with multiple rejections, a pacemaker, a couple of cardiac arrests and countless Dr. visits. But my heart is so full of gratitude and thanks to our Heavenly Father for allowing her to still be with us, he could have taken her back a few times but she is still here and I can't ask for anything else. She is such a trooper and one of the strongest little girls I know.

I am also so thankful for her donor and the family that allowed there child to donate his/her heart to my little munchkin and gave her a second chance at life. What a difficult decision to have to make when you've just lost a child. My heart goes out to them and I think about them often even though I don't know them, they are apart of us and always will be.

I am so thankful that I have been able to watch her grow into the young little lady she is, and with out that new heart I wouldn't have been able to watch her walk, potty train her, watch her ride a 2 wheeler for the first time, teach her to tie her shoes, listen to her little voice everyday, tuck her in at night and now home school her.

Yes it scares me when she has rejection or ends up in the hospital, we have lost some very good friends the past 5 years that have passed away due to rejection and there heart just couldn't take it anymore. So I am very blessed that Kenzie is doing good and is still with us. I just have to continue to do what I am doing and give her hugs and kisses everyday, tell her I love her and let her know how proud I am of her.

I am looking forward to many, many, many more years watching her grow and succeed in life and become the best she can be. I am so proud of her and all that she does for me and everyone around her, she has the most precious spirit about her and when you are around her you can feel the love that she has for everyone.

I love you Makenzie and I am so proud of you and the strength you have and for making me a better person. you defiantly have a special spirit and I am so proud to call you my daughter.

A special friend stopped by for Kenzie's day (her make a wish Volunteer) and gave her a flower along with a pack of donuts. We love you Roberta thanks for all you have done for Kenzie, she just adores you and loves you!!!

I also got some good news yesterday from her Dr. on her last cath they had a question about her Coronary arteries and if they were thinning or not and they got the past cath results from Denver to compare from a few weeks ago and there were no signs of thinning or Coronary Artery Disease. Yeah for good news, way to go Kenzie!!!
And as always, Be A Hero Be A Donor!!

Yearly Cath

Kenzie had her yearly cath which they go through her groin area instead of her neck and this is the first time that PCMC has done her yearly cath, so it was new to us and the Dr. It is always nerve raking when that time comes around even though she looks healthy on the outside there is always that chance that her heart my not be healthy. There is always that chance of coronary artery disease or rejection. During the whole time Kenzie is in the Cath lab a million things go through my mind, it is always hard to let Kenzie go into a procedure and entrust the doctors to take good care of her.
2 hours later and she is done, Dr Day came and talked to me about the results he was happy about her pressures and her function he had questions about her coronaries because there was a slight thinning on both the left and right one but he didn't seem too concerned but he is going to have Denver send Kenzie's past cath results to see whether it is just her normal coronaries or if they are really thinning. You never want to hear any news that isn't reassuring or good but we are praying that her coronary artery's are still healthy and that is just the way her coronaries have always been. Because if transplant kids end up with coronary artery disease they end up needed a new heart transplant.
She also had clinic after her cath her echo looked good but Dr. Everett noticed that there was a valve leaking a little more than it was on her last echo but she said it could be because of the cath and they will check it next visit, but she didn't seem to concerned. She was also pleased with her Cath results and her Biopsy results they came back and on the international scale which what Denver uses was a 0 so that is perfect. Her other scores came back C1V2, ISHLT0, pAMR1, which I'm not exactly sure what they all mean she explained them to me but I can't recall it, but she liked the numbers.
So we are just waiting for Denver to send them the last cath results and then we will go from there. But they didn't seem to concerned at this point.