Bye, bye Hannah the fish

Kenzie got a beta fish on her 4 birthday from her Aunt Melissa. She loved that fish so much that she named it Hannah Montana yep just like her favorite singer.

Her fish started looking sick and swimming kind of funny and hanging out at the bottom corner of her fish tank. Kenzie cried cause she new that her fish was sick and going to die. But sweet Makenzie did not want to flush her down the toilet she wanted a proper grave site for her fish.

When her fish finally died she made her a head stone and dug a hole for her in front of our house and had Uncle Neal come over and get her out and put her in the ground.

She got over her fish pretty quickly I think because Uncle Neal took her and Braxton out to get new fish, they both got 2 each and named them Jake, Miley, Hannah and Jessie yes they are all names from the movie Hannah Montana. Who knew ha ha.

Follow up cath

Kenize had a follow up cath on the 18th to see if the rejection is gone and the treatments are working we had to get up at 5 a.m to get to the hospital at 6 a.m. She was scheduled to go in at 7:30 a.m which was kind of nice because then she didn't have to fast all day.

She finally went back and an hour later they came and got me and Dr. Day talked to me and said her pressures were still high but lower than when she got admitted so that was pretty good news I was hoping for it to be cleared up but at least her pressures were going down and not up and the treatments were working.

After the cath she then had to go get an echo done and see her cardiologist. The echo looked much better this time :).

After her clinic we then had to go get her IV treatment which is like a 3 hr process. So basically she gets to watch a movie and color she gets pretty bored but she likes that she gets to order food. We were finally able to leave at 4:30 p.m. Yes it was a long day but Kenzie is doing good she needs one more IVIG treatment then starts her Rituximab which is a 6 hour treatment but at least that one she gets to do at home.

Later that night Her Coordinator called and said the biopsy results are in and her first cath was a 4v and this cath was a 3v. So that is also looking better.

Rejection

Oct 27th Kenzie had her monthly check up it was suppose to be an in and out clinic visit Makenzie looked healthy and seemed fined but when she got her echo done and Dr. Everitt came in and listened to her they decided she was in rejection from the looks of her echo and the gallop in her heart. So they decided she needed to be admitted to the hospital of course not expecting it I cried. They got her admitted and had her get a cath done but before her cath she was able to get a blessing, which Tyler wasnt able to get off work so a couple of elders from our ward came and gave her the blessing.

After the cath was all done Dr. Day came and talked to me and told me her pressure's were higher then they were suppose to be which is a result in rejection, so we needed to wait for the biopsy to see how bad it was and what type of rejection it was.

Later that night we got the results back and we found out that it was antibody rejection, which means she will need to do plasma foresees. So she was admitted to the CICU while doing her treatments she needed 5 of them every other day. It is a machine that filter's her plasma and puts back the good plasma.

We eventually were able to go to CSU which is the floor, so it was a little more relaxed and Kenzie was able to go to the play room but of course she had to wear a mask. She was able to finish her plasma foresees on the floor so that was nice for her.

Patrolling the halls

Being the Dr. instead of the patient

We had to spend Halloween there which wasn't to bad grandma Lehwalder came and gave Kenzie some Halloween decorations to put up in her room. Later that day they had a Halloween party and trick or treating around the hospital. Kenzie and Braxton dressed up, Kenzie was the cutest witch there and braxton was spider man who kept webbing every nurse in sight
(yes he likes to flirt). They both ended up with a bag full of candy and goodies, it turned out to be a nice Halloween all things consider.

Her last treatment was on Nov 5th and the she got 2 other treatments IVIG, and Rituximab they wanted to see how it went and how she reacted to the other 2 treatment before getting released. She did pretty well she threw up once, but no reaction which is good.

Sunday came and we finally got discharge she went home on 9 different medications, but she was glad to get the IV out of her neck and the pic line out of her arm. She will have to continue the IV treatments The Rituximab is a 4 time treatment which we will do at PCMC when she goes in for her clinic, and the Rituximab is a 6 time treatment once a month at home.

Thank you all for your thoughts and prayers through out the week.