Changing Clinic on us Ugh

Clinic was last Thursday for Makenzie I am just slow at blogging. We got there at 7:30 in the morning got her blood drawn and didn't even have to wait for her echo they came and got us right when we sat down in the room. Unfortunately it took the Echo tech an hour to do her echo. Luckily we were able to watch Bolt, and we were able to watch half of it cause it took him forever.
We then were able to see Michelle. Everything looked perfect her echo was perfect and I forgot to mention that I watched her echo and her heart rate stayed in the high 80's and 90's yeah. No dipping and bouncy around yeah. So maybe it was just a fluke thing going on last time. But I still have my guard up. Checking her heart every night.
Before we left Michelle said we will see you in 2 months. My reaction was "what 2 months no one talked to me about changing things around on us. I am not ready for 2 month check ups I like the reassurance of her getting checked every month". Michelle said that she is doing good and there is no reason to keep coming every month. Me "I new you guys wanted to extend the halter monitors to every 6 months but not spreading her clinic days out". Talk about taking things slow for us. Not all at once people. One thing at a time. But I guess not. It should be a good thing, I know I should be good with every 2 months cause she is doing so well and staying healthy. For that I am thankful I don't want to come off as ungrateful that she is doing good I am so happy and it makes my heart so full of joy that she is staying healthy and she can be seen every 2 months. But it is still a little hard on me because I like being reassured that she is doing well.
So her next appointment is January.
We then started walking to the cafeteria cause we get breakfast every time she has clinic and we ran into Emily and I asked her about every 2 months and she said she is doing well and I just started crying because I hate the winter now cause of all the germs and kenzie getting sick and her rejection last year was really hard on us and her almost losing her was something I don't ever want her to have to go through. I know I maybe paranoid but I like the reassurance of her heart and body doing well. I could probably have her go every month for the rest of her life just to no that she is doing well. Emily gave me a big hug and said if I ever need anything you no that you can always call or just call for moral support. Emily is defiantly my favorite coordinator here in Utah and Makenzie's. But overall Carrie in Denver is her most favorite.
Anyways later that day Michelle called and said her Prograf level is super high 17 which it is suppose to be between 6 and 8 so we got to skip her med that night and drop her dose down to .57 Kenzie was pretty excited that she only had to take one of her meds that night.
We had to go back to PCMC on Monday to get her levels rechecked and again it was high but lower than before it was around 9 so they lowered her meds to .56 and we get to go back on Monday for another level check so we will see how that goes. And then we wont be back until January Ugh. But I am thankful that she is doing so well that they can extend out her visits. But again it is still hard on me.