Another 2 weeks have gone bye

Well it has been 2 weeks since Kenzie has had clinic so here we go. This week clinic took forever it started off with labs which they had to get a lot of blood so they needed to use her vein so they first tried her right hand and the vein got blown so it was no good but to my surprise she didn't even cry once, so they went for her left hand and got a good vein and on this hand she only cried a little.
Then she got put in her room to wait for the Echo tech to come and get us and once they came and got her their was an emergency in the Cath lab that needed a Tech so her Tech left so we then had to wait for them to come and get us 15 min went by and nobody has came to get her but other Techs have came and gone with other kids. So finally i went and got a Tech and they finally saw her and got her Echo done it is now 9:30 a.m and if you no we usually are done by then. But we had to wait to see the Transplant Coordinator and the Cardiologist.
The Echo results came back and they looked good her labs are also good, her levels also came back her Prograf level is finally on target but once we start the new bottle we need to let the Coordinator no so they can monitor her levels to make sure the new bottle is mixed right. We also got her cellcept level back it is a Little high but they are going to leave her where she is at. We finally were able to leave and it was 10:45 a.m

Levels

This week has been crazy busy with going to PCH last Thursday during clinic her levels were low so they up her dose to .47. S0 we had to go back to the hospital on Monday to get her levels rechecked and it was up but not where they wanted it to be so they up it once again to .48 and wanted Makenzie to come back today to get it checked again. Once again her levels dropped so Emily up her dose to .5 and we get to go back on Monday to get her blood drawn again.
I then called Carrie to see if PCH has been faxing Makenzie's note's and last clinc she did not receive any thing so i asked her about Makenzie's levels and she mentioned getting a new bottle, I then thought about it and Makenzie started a new bottle right before her clinic day so I called Emily back and told her about it and she is going to keep track and if it is the new bottle she will talked to the pharmacy to get a new one refilled.

Life is wonderful

Clinic is always a fun adventure haha. Getting up early is no fun with 2 kids actually this morning was not bad because they went to bed early. Anyways luckily this week they did not need a lot of blood so they poked her little finger and not even one tear. Clinic was running slow so we didn't even get into her echo until 8:30 a.m. We actually saw her coordinator before the echo which was nice then we wouldn't have to wait for Michelle after the echo, just Dr. Everit (cardiologist) .

Makenzie's echo and her heart sounded good. Makenzie actually gained weight as well she is up to 25 pounds which does not sound like much but for her little self it is awesome. All of her blood work looked good except her Prograf level was way low it was 3.2 when it is supposed to be between 6-8 so they increased her dose to .47 and on Monday we need to go back to PCH to get another lab drawn to see if her level went back up. So we get to get up early once again.